Investigation and analysis of disease cognition among parents of children with inflammatory bowel disease

doi:10.3760/cma.j.issn.1007-1245.2023.23.039

Abstract

Abstract:

Objective　To investigate the current status of disease cognition among parents of children with inflammatory bowel disease and analyze the characteristics. Methods　A Chinese version of the Crohn's and Colitis Knowledge Score was used to conduct a survey on 157 parents of children with inflammatory bowel disease in Guangzhou Women and Children's Medical Center from June 2021 to October 2022 using a convenient sampling method. There were 93 boys and 64 girls. The age range of the children was 3 months to 18 years old, with an average age of (9.80±4.78) years old. The parents' disease knowledge scores and correct answer rates were analyzed. Results　The disease knowledge score in the parents of children with inflammatory bowel disease was 6 (2,9) points. Among them, the score of dietary knowledge was 1 (0,1) points, the score of drug knowledge was 3 (1,5) points, the score of general knowledge was 1 (0,1) points, and the score of complication knowledge was 2 (0,2) points. Among the 24 knowledge items, 8 items were unknown to parents of children with inflammatory bowel disease by more than 70%. Conclusion　The parents of children with inflammatory bowel disease have a low level of disease knowledge, and nursing staff need to provide personalized intervention measures based on the specific situation of the parents' disease cognition to improve their disease knowledge level.

Key words:

Inflammatory bowel disease, Children, Parents, Disease knowledge

摘要：

目的　调查炎症性肠病患儿父母疾病认知现状，分析炎症性肠病患儿父母疾病认知特点。方法　采用中文版克罗恩病与溃疡性结肠炎知识问卷，于2021年6月至2022年10月通过方便抽样方法对广州市妇女儿童医疗中心157例炎症性肠病患儿父母进行调查，其中患儿男93例，女64例，年龄范围在3个月～18岁，年龄为（9.80±4.78）岁。分析患儿父母疾病知识得分及回答正确率。结果　炎症性肠病患儿父母的疾病知识得分为6（2，9）分，其中饮食知识得分1（0，1）分，药物知识得分3（1，5）分，一般知识得分1（0，1）分，并发症知识得分2（0，2）分。24条知识条目中，炎症性肠病患儿父母70%以上不知道的项目有8条。结论　炎症性肠病患儿的父母疾病知识水平普遍较低，护理人员需根据患儿父母的疾病认知具体情况提供个性化的干预措施，提高患儿父母的疾病知识水平。

关键词:

炎症性肠病, 儿童, 父母, 疾病知识

Liu Liying, Wei Lijuan, Zhang Miaoxian, Tang Yingyu, Zhang Chaomi.

Investigation and analysis of disease cognition among parents of children with inflammatory bowel disease [J]. International Medicine and Health Guidance News, 2023, 29(23): 3497-3500.

刘丽英魏丽娟张妙贤唐盈玉张超米.

炎症性肠病患儿父母疾病认知调查分析 [J]. 国际医药卫生导报, 2023, 29(23): 3497-3500.

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