关键词:

难治性哮喘, 患儿, 父母, 家庭管理方式, 潜在剖面分析

Abstract:

Objective　To explore the potential profile and influencing factors of family management styles in parents of refractory asthma children, and to provide basis for formulating individualized family management intervention strategies. Methods　A total of 218 children with refractory asthma and their parents were selected from the respiratory department of Hunan Children's Hospital, Xiangya School of Medicine, Central South University from January 2024 to February 2025 by the convenience sampling method. In the 218 children, there were 130 boys (59.63%) and 88 girls (40.37%); the age ranged from 3 to 14 years old, among whom 118 cases (54.13%) aged 3 to 7 years, and 100 cases (45.87%) aged 8 to 14 years. Among the children's parents, there were 86 fathers (39.45%) and 132 mothers (60.55%); the age ranged from 25 to 35 years old in 94 cases (43.12%), and over 35 years old in 124 cases (56.88%). The data were collected through the General Information Questionnaire, Family Management Measure (FaMM), Family Hardiness Index (FHI), and Perceived Social Support Scale (PSSS). Potential profile analysis was used to classify the family management styles, and the influencing factors were screened using the χ² test, one-way analysis of variance, and multivariate logistic regression analysis. Results　The family management style in parents of refractory asthma children was divided into three potential profiles: a negative family management style group [29.36% (64/218)], a general family management style group [40.37% (88/218)], and an active family management style group [30.27% (66/218)]. Multivariate logistic regression analysis showed that the duration of asthma, attack frequency, parents' self-rated care ability, daily care time, family tenacity, and social support were independent influencing factors of family management style (all P<0.05). Conclusions　There are obvious differences in the family management styles in parents of refractory asthma children, and the family management style is affected by many factors. According to the characteristics and influencing factors of family management, nursing staff should provide targeted nursing intervention for families of refractory asthma children, so as to improve the effect of family management, reduce the burden of family, and enhance the children's quality of life.

Key words:

Refractory asthma, Children, Parents, Family management style, Potential profile analysis