病人专家项目干预对肺动脉高压患者自我效能与生活质量影响的质性研究

doi:10.3760/cma.j.cn441417-20250211-19033

国际医药卫生导报 ›› 2025, Vol. 31 ›› Issue (19): 3334-3339.DOI: 10.3760/cma.j.cn441417-20250211-19033

病人专家项目干预对肺动脉高压患者自我效能与生活质量影响的质性研究

徐燕妮潘燕芬程晓玲郭金玲曾秋璇

广州医科大学附属第一医院呼吸内科国家呼吸研究中心，广州 510000

收稿日期:2025-02-11 出版日期:2025-10-01 发布日期:2025-10-24
通讯作者: 曾秋璇，Email：6153043@qq.com
基金资助:
广东省医学科学技术研究基金（A2023346）

A qualitative study on the impact of patient expert program intervention on self-efficacy and quality of life in patients with pulmonary hypertension

Xu Yanni, Pan Yanfen, Cheng Xiaoling, Guo Jinling, Zeng Qiuxuan

Department of Respiratory Medicine, The First Affiliated Hospital of Guangzhou Medical University,National Center For Respiratory Medicine, Guangzhou 510000, China

Received:2025-02-11 Online:2025-10-01 Published:2025-10-24
Contact: Zeng Qiuxuan, Email: 6153043@qq.com
Supported by:
Guangdong Province Medical Science and Technology Research Fund (A2023346)

摘要/Abstract

摘要：

目的　探讨病人专家项目干预的肺动脉高压（PH）患者真实护理体验情况，为护理工作人员提供创新性护理方法。方法　对2020年12月至2022年3月期间在广州医科大学附属第一医院行病人专家项目干预的30例PH患者进行半结构式访谈。通过质性研究现象学分析法对资料进行整理和分析，提炼出PH患者消极的生理、心理不适感和疾病相关知识缺乏、病人专家项目提升自我效能与生活质量3个主题，以及14个亚主题。结果　受访者对消极的生理、心理不适感受的主题为：活动能力受限、其他生理不适、给家庭带来负担的心理压力、被动减少社交；对疾病相关知识缺乏的主题为：PH的病因、最新治疗进展、日常饮食保健等居家护理指导、女性患者妊娠问题，以及保持情绪稳定的方法等；病人专家项目提升自我效能与生活质量的主题为：愿意参与病人专家项目、交流方便、节省时间和专业性强、能提高自我效能感、有效改善生活质量。结论　病人专家项目干预对PH患者的自我效能提升与生活质量改善具有积极作用。通过健全病人专家项目干预，构建PH患者的护理方案，可有效提升PH疾病的医疗服务质量。

关键词:

肺动脉高压, 病人专家项目, 自我效能, 生活质量, 质性研究

Abstract:

Objective　To explore the actual nursing experience of patients with pulmonary hypertension who participated in the patient-expert project intervention, and to provide innovative nursing methods for nursing staff. Methods　Thirty patients with pulmonary hypertension who received the patient expert program intervention at the First Affiliated Hospital of Guangzhou Medical University from December 2020 to March 2022 were interviewed using a semi-structured approach.Through the qualitative research phenomenological analysis method, the data were sorted and analyzed, and three themes and 14 sub-themes were extracted: negative physical and psychological discomfort of patients with pulmonary arterial hypertension, lack of disease-related knowledge, and the patient expert project enhancing self-efficacy and quality of life. Results　The themes that the respondents mentioned regarding negative physical and psychological discomfort were: limited mobility, other physical discomfort, psychological stress caused by burdening the family, and passive reduction in social interaction.The topics lacking in knowledge related to the disease are: the causes of pulmonary arterial hypertension, the latest treatment progress, home care guidance such as daily diet and health care, issues related to pregnancy for female patients, and methods for maintaining emotional stability, etc.The theme of the "Patient Expert Project" on enhancing self-efficacy and quality of life are: willingness to participate in the program, convenient communication, time-saving, strong professionalism, enhancing self-efficacy, and effectively improving quality of life. Conclusion　The intervention of the patient expert program has a positive effect on the self-efficacy and quality of life of patients with pulmonary hypertension.By implementing the patient expert project intervention and formulating a nursing plan for patients with pulmonary hypertension, the medical quality of pulmonary hypertension treatment can be effectively improved.

Key words:

Pulmonary hypertension, Patient expert program, Self efficacy, Quality of life, Qualitative research

徐燕妮潘燕芬程晓玲郭金玲曾秋璇.

病人专家项目干预对肺动脉高压患者自我效能与生活质量影响的质性研究 [J]. 国际医药卫生导报, 2025, 31(19): 3334-3339.

Xu Yanni, Pan Yanfen, Cheng Xiaoling, Guo Jinling, Zeng Qiuxuan.

A qualitative study on the impact of patient expert program intervention on self-efficacy and quality of life in patients with pulmonary hypertension [J]. International Medicine and Health Guidance News, 2025, 31(19): 3334-3339.

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病人专家项目干预对肺动脉高压患者自我效能与生活质量影响的质性研究

A qualitative study on the impact of patient expert program intervention on self-efficacy and quality of life in patients with pulmonary hypertension

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