Abstract:

Objective　To explore the effect of family cooperative management mode combined with resistance exercise training in the improvement of the quality of life of children with rheumatoid arthritis. Methods A total of 120 children with rheumatoid arthritis admitted to Children's Hospital Affiliated to Zhengzhou University from February 2021 to December 2022 were selected for the prospective study, and were divided into a conventional group and an experimental group by the random number table method, with 60 cases in each group. There were 26 males and 34 females in the conventional group; they were (12.03±1.49) years old. There were 25 males and 35 females in the experimental group; they were (12.15±1.47) years old. The conventional group took traditional nursing measures. The experimental group took family cooperative management mode and resistance exercise training to intervene and train the family members of the children.Both groups were treated for 3 months. The hand grip strength and scores of pain and fatigue before and after the intervention were compared between the two groups. The quality of life of the two groups after the intervention was assessed. The negative emotion scores before and after the intervention were compared between the two groups. The satisfaction rating table was used to investigate the satisfaction degrees of the two groups. χ² and t tests were applied. Results　Before the intervention, there were no statistical differences in the hand grip strength and scores of pain and fatigue between the two groups (all P>0.05); after the intervention, the hand grip strength and scores of pain and fatigue in the experimental group were better than those in the conventional group (all P<0.05). After the intervention, the scores of physical function, mental function, health status, and social function in the experimental group were higher than those in the conventional group (all P<0.05). Before the intervention, there were no statistical differences in negative emotion scores between the two groups (both P>0.05); after the intervention, the scores of Self-rating Anxiety Scale and Self-rating Depression Scale in the experimental group were lower than those in the conventional group [(45.17±4.03) vs. (57.98±5.16) and (41.73±4.46) vs. (54.74±5.32)], with statistical differences between the two groups (both P<0.05). The total satisfaction of the experimental group was higher than that of the conventional group [96.67% (58/60) vs. 81.67% (49/60)], with a statistical difference (χ²=6.988, P=0.008). Conclusion　Family cooperative management mode combined with resistance exercise training for children with rheumatoid arthritis can improve their quality of life, relieve their pain and fatigue, and reduce their anxiety and depression, with high patient satisfaction.

Key words:

Rheumatoid arthritis, Family cooperative management mode, Resistance exercise training, Quality of life

摘要：

目的　探讨家属协同管理模式联合抗阻运动训练对提高类风湿关节炎患儿生活质量的影响。方法　选取2021年2月至2022年12月郑州大学附属儿童医院收治的类风湿关节炎患儿120例，开展前瞻性研究，根据随机数字表法分为常规组和试验组。常规组60例，男26例，女34例，年龄（12.03±1.49）岁，给予传统护理措施。试验组60例，男25例，女35例，年龄（12.15±1.47）岁，采用家属协同管理模式联合抗阻运动训练干预。两组均干预3个月。比较两组患儿干预前后双手握力均值、疼痛及疲劳评分，评估两组患儿干预后生活质量，比较干预后两组患儿的负性情绪评分，并使用满意度评价表调查患儿对干预措施的满意程度。采用χ²检验、t检验进行统计分析。结果　干预前，两组患儿双手握力均值、疼痛及疲劳评分比较，差异均无统计学意义（均P>0.05）；干预后，试验组患儿双手握力均值高于常规组，疼痛评分和疲劳评分低于常规组（均P<0.05）。干预后，试验组患儿躯体功能、心理功能、健康状况和社会功能评分均高于常规组（均P<0.05）。干预前，两组患儿负性情绪评分指标比较，差异均无统计学意义（均P>0.05）；干预后，试验组焦虑自评量表和抑郁自评量表评分分别为（45.17±4.03）分、（41.73±4.46）分，常规组分别为（57.98±5.16）分、（54.74±5.32）分，两组比较差异均有统计学意义（均P<0.05）。试验组患儿对干预措施总满意度［96.67%（58/60）］高于常规组［81.67%（49/60）］，差异有统计学意义（χ²=6.988，P=0.008）。结论　家属协同管理模式联合抗阻运动训练可提高类风湿关节炎患儿的生活质量，缓解疼痛和疲劳程度，减轻焦虑抑郁情绪，患儿满意度较高。

关键词:

类风湿关节炎, 家属协同管理模式, 抗阻运动训练, 生活质量